NASHVILLE (WSIL)--The Habbe Family from Nashville, Illinois is just like any other family. They go on vacations and play with dinosaurs, and Sherry and RH love their son, Douglas.
"Douglas is our 7-year-old little boy. He's a fun little guy. He loves his dinosaurs, tractors, all the boy stuff," said Sherry.
But Douglas is not like most little boys his age.
When Sherry was pregnant with Douglas, her and RH found out Douglas had a disease called Prune Belly Syndrome.
"Prune belly Syndrome is a genetic disease. We don't know necessarily what causes it, but the abdominal muscles don't develop, and probably more importantly for the child, the urinary system develops very abnormally," said Dr. Blaine Eubanks, an Internist Pediatrician from SIH Primary Care Harrisburg.
Doctors were able to diagnose Douglas while Sherry was pregnant, but he still spent 84 days in the NICU after he was born.
"He has spent more of his life in the hospital, instead of at home with us, his family," said Sherry.
Douglas is treated by special doctors in St. Louis, which is an hour away from their home.
"We're just always going to the doctor, it seems like. It seems like we're always on the road, going to the doctor. And it's not fair, it's not fun for a little kid to have to go through stuff that most adults don't even have to go through," said Sherry. "For him this is all normal, this is his life. But for us, it's hard. Seeing him suffer and have to go through all this."
Since June of last year, Douglas has been doing peritoneal dialysis treatments.
Every night, Sherry and RH hook Douglas up to a special machine that works in place for his kidneys while he sleeps.
"We've been fortunate that the peritoneal dialysis has been working for him, doing the job that his kidneys can't do anymore," said Sherry. "Ultimately, the dialysis is keeping him alive, but without the dialysis, we wouldn't have Douglas."
Douglas is now on the list hoping for a donor kidney.
"We're just waiting and praying that we'll get a call for a deceased donor or that someone is a match for him," said Sherry.
Sherry started a Facebook page to update everyone on how Douglas is doing, but also to help potential donors find out about Douglas.
"Whenever they have a living donor, typically, the kidney will last longer than whenever they receive a deceased kidney," said Sherry.
Now, it's a waiting game until Douglas gets the call that could change his life.
"The right person has to be out there. It's just the matter of finding the right person. So, we're just trying to do what we can to get him his kidney that he needs," said Sherry.